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Schoolgirl Olivia, from Glasgow, has been left wheelchair-bound due to her childhood epilepsy.

The mother of an eight-year-old girl who suffers 300 seizures a day says she has been ‘robbed of her childhood’.

Olivia, from Glasgow, has Doose Syndrome, a severe form of childhood epilepsy.

On her worst days the schoolgirl can suffer up to 300 seizures a day which can cause loss of consciousness, serious falls and have left her black and blue.

Over the last six years Olivia’s condition has gotten so bad that she has lost the ability to walk and is now wheelchair-bound.

Her mum Julie Cabrey, 45, says the youngster’s medication can leave her feeling ‘like a zombie’ and her health struggles have robbed her of a normal childhood.

She told the Record: “Her seizures have gone absolutely haywire in the last 18 months.

“Last year, we counted her 300th seizure one day. Now we’ve just stopped counting.

“I have to sit down everyday and watch my daughter constantly have different types of seizures. It’s been absolutely horrific.

“She can’t do normal things that other kids her age are doing.

“She can’t go out to play with her friends, she needs me there at all times.

“She’s on a strict keto diet so she can’t have McDonald’s or sweets. She can’t even go to her friend’s birthday parties. She misses out on a lot.”

Olivia was just 15 months old when she was first hospitalised with convulsions.

She wasn’t diagnosed with Doose syndrome until several months later.

In 2021, the youngster underwent brain surgery to try and alleviate the seizures but the procedure was unsuccessful.

She now has to permanently wear a safety helmet and has a camera installed in her bedroom to monitor her falls.

Mum Julie, who works as a support learning worker for Glasgow City Council said she has now turned to funding medicinal cannabis oil treatment for her daughter.

Olivia is currently receiving the treatment at the Sapphire Medical Clinic in Stirling – Scotland’s first approved medicinal cannabis clinic – but the family face mounting costs of up to £1,200 a month to increase her dose.

She continued: “We’ve got to the stage where we can’t live like this anymore.

“As a family we’ve had to sacrifice a lot. I’ve had to change my career and go part time so I can be available for Olivia.

“Family life isn’t normal. Olivia hates her seizures. She just wants to be like her friends. It really affects her mentally.”

“We’ve been introducing cannabis oil since January. We’ve seen Olivia have good days on it.

“I’m hopeful we can increase her dose but it’s double the price. We simply can’t afford it.

“We just need any release from this so she can be a normal child”

Julie hopes she will be able to fundraise the cash to pay for treatment.

 

Source: dailyrecord.co.uk, Fionnuala Boyle

 

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