Category: "Support"

Florida is set to stabilize and expand funding for epilepsy services

Florida is set to stabilize and expand funding for epilepsy services

After years of uncertainty epilepsy services are set to see their first stable source of funding from the state. The money, providers say, will help hundreds of thousands of Floridians, their families and their caregivers. “Epilepsy can impact any family, and at any moment, without any warning. And this year, epilepsy impacted my family.” Representative […]

How a psychologist supports a unique patient population in the Epilepsy Monitoring Unit

How a psychologist supports a unique patient population in the Epilepsy Monitoring Unit

Dr. Sarah Vernon-Scott, Psychologist in the Epilepsy Monitoring Unit (EMU) in Clinical Neurosciences at London Health Sciences Centre (LHSC), works with a variety of neurology patients, including individuals diagnosed with Psychogenic Nonepileptic Seizures (PNES). “PNES are events that look like epileptic seizures, but there is none of the correlated brain activity that is seen in […]

Addressing Racial Disparity in Infantile Epileptic Spasms Syndrome: A Boston Children’s Hospital Initiative

Addressing Racial Disparity in Infantile Epileptic Spasms Syndrome: A Boston Children’s Hospital Initiative

Understanding Infantile Epileptic Spasms Syndrome Infantile Epileptic Spasms Syndrome (IESS), also known as infantile spasms, is the most common form of epilepsy observed during infancy. Characterized by spasms, loss of consciousness, and often intellectual disability, IESS is a severe disorder that requires early diagnosis and immediate referral to a neurologist for effective treatment. However, recent […]

Experts and patients create guide for treating people with epilepsy

Experts and patients create guide for treating people with epilepsy

Epilepsy care should be more local, with people given an expert “point of contact”, and decision making should be better shared between patients and doctors, according to the National Neurosciences Advisory Group (NNAG). The NNAG’s “optimal clinical care pathway” for adults with epilepsy has been developed by organizations including Epilepsy Action. A clinical pathway is the journey […]

3.3 million children lose Medicaid coverage

3.3 million children lose Medicaid coverage

So far this year, there are at least 3.5 million fewer children on Medicaid rolls compared to last year. Nina Serdiuk recalls the stressful moments when she found out her 14-year-old son Matvii had lost his Medicaid enrollment. With his medical condition, it is impossible for him to be without doctors and without insurance. “Without any explanation […]

RECENT NEWS