Category: "Support"

Stigma can be the most difficult part of living with epilepsy

Stigma can be the most difficult part of living with epilepsy

Stigma affects all aspects of epilepsy care, from diagnosis and treatment to nationwide legislation and budget allocations. It affects the lives of people with epilepsy when they are not given equal access to education, employment, and social opportunities. A population-based study in the United States found that one-third of respondents identified stigma-;not seizures-;as the most […]

Epilepsy Could Become Easier to Pinpoint With Blood Test

Epilepsy Could Become Easier to Pinpoint With Blood Test

Summary: Higher levels of immune proteins are present in the blood both before and after an epileptic seizure. Researchers say the biomarkers can be identified via a simple blood test. Source: Lund University Researchers from Lund University in Sweden have discovered higher levels of immune proteins in the blood before and after an epileptic seizure. The possible […]

I Thought My Seizures Were ‘All In My Head’ – But I Wasn’t Making Them Up

I Thought My Seizures Were ‘All In My Head’ – But I Wasn’t Making Them Up

In 2019 I began losing control of my body and started having seizures. Initially they were every few months but became increasingly frequent until they were happening four times a day, lasting up to an hour at a time. My right arm developed a permanent tremor and I suffered from severe exhaustion. Having been signed off work, […]

Aftermath of Seizures Troubling for Those With Epilepsy

Aftermath of Seizures Troubling for Those With Epilepsy

The main focus of epilepsy treatment is seizure control, but the aftereffects of seizures are also a major concern for many patients, experts say. More than 70% of people with epilepsy say they have complications after a seizure — including confusion, fear, exhaustion, headache, emotional reactivity, memory problems and behavioral changes — that can last […]

Personalized Brain Modeling for Clinical Epilepsy Trial Breakthroughs

Personalized Brain Modeling for Clinical Epilepsy Trial Breakthroughs

Researchers of the Human Brain Project (HBP) have published a new study in Science Translational Medicine presenting advanced brain modelling methods for epilepsy clinical care. The article, which is featured on this week’s cover of the journal, describes the methodology used in the EPINOV clinical trial (Improving Epilepsy surgery management and progNOsis using Virtual brain technology). The […]

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