Category: "Support"

Addressing Racial Disparity in Infantile Epileptic Spasms Syndrome: A Boston Children’s Hospital Initiative

Addressing Racial Disparity in Infantile Epileptic Spasms Syndrome: A Boston Children’s Hospital Initiative

Understanding Infantile Epileptic Spasms Syndrome Infantile Epileptic Spasms Syndrome (IESS), also known as infantile spasms, is the most common form of epilepsy observed during infancy. Characterized by spasms, loss of consciousness, and often intellectual disability, IESS is a severe disorder that requires early diagnosis and immediate referral to a neurologist for effective treatment. However, recent […]

Experts and patients create guide for treating people with epilepsy

Experts and patients create guide for treating people with epilepsy

Epilepsy care should be more local, with people given an expert “point of contact”, and decision making should be better shared between patients and doctors, according to the National Neurosciences Advisory Group (NNAG). The NNAG’s “optimal clinical care pathway” for adults with epilepsy has been developed by organizations including Epilepsy Action. A clinical pathway is the journey […]

3.3 million children lose Medicaid coverage

3.3 million children lose Medicaid coverage

So far this year, there are at least 3.5 million fewer children on Medicaid rolls compared to last year. Nina Serdiuk recalls the stressful moments when she found out her 14-year-old son Matvii had lost his Medicaid enrollment. With his medical condition, it is impossible for him to be without doctors and without insurance. “Without any explanation […]

Christmas lights can bring joy to Australian suburbs, but for some they pose a health risk

Christmas lights can bring joy to Australian suburbs, but for some they pose a health risk

When suburban homes light up Christmas decorations as part of an annual December tradition, it can be a joyful time for the community. For Jessi Hooper, who has a rare neurological condition, it’s a cue to stay behind closed curtains. Ms. Hooper lives with photosensitive epilepsy, which can cause her body to go into seizure when […]

Hard Conversations in Managing Epilepsy in Teenagers: Contraception

Hard Conversations in Managing Epilepsy in Teenagers: Contraception

ORLANDO, Fla.—Because of medication interactions, risks for abuse and the teratogenic effects of anti-seizure drugs, adolescents with epilepsy who become pregnant have a unique risk profile that should be addressed by their neurology care team, said Sarah Weatherspoon, MD, a pediatric epileptologist at Le Bonheur Children’s Hospital, in Memphis, Tenn., at the 2023 annual meeting […]

Greater preparation, increased communication needed in post-pandemic epilepsy care

Greater preparation, increased communication needed in post-pandemic epilepsy care

Key takeaways: Health care professionals should be prepared for the next pandemic armed with lessons from COVID-19, a speaker said. Work policy in the post-pandemic era must be clear, transparent, fair and overtly communicated.   ORLANDO — In Health care, and epilepsy care specifically, greater preparation, communication and innovation are required to maintain a standard […]

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