Global biopharma company UCB says the UK’s National Institute for Healthcare Excellence (NICE) has issued a positive Final Appraisal Determination (FAD) for its FINTEPLA (fenfluramine) oral solution. FINTEPLA is used for the treatment of seizures associated with Dravet syndrome as an add-on therapy to other anti-epileptic medicines for patients two years of age and older. […]
People with well controlled epilepsy may not be offered an annual review, according to the updated guidelines for epilepsy healthcare professionals from The National Institute for Health and Care Excellence (NICE). NICE now recommends that regular reviews (at least once a year) a should be offered to certain groups of people with epilepsy, according to […]
Impaired electrical signaling from a subtype of neuron may contribute to the deadly seizures associated with Dravet syndrome, according to a new study in mice. Dravet syndrome is a severe form of epilepsy typically caused by mutations in the SCN1A gene, which encodes a subunit of a sodium channel that neurons need to generate and propagate action potentials. About a quarter […]
The family and friends of Shane Corrigan, who died in 2018 from SUDEP (sudden unexpected death in epilepsy), will cycle from London to Achill in August to raise funds for SUDEP Action and Epilepsy Ireland. Shane Corrigan died on 7 January 2018, aged just 23. His sudden death came only three years after he was […]
A collaborative trial led by researchers at Monash University and Alfred Health, in collaboration with the Royal Melbourne Hospital has detected a high incidence of irregular heartbeats that can lead to cardiac arrest in people with chronic drug-resistant epilepsy, providing a new pathway for preventative treatment. The breakthrough finding suggests there is a link between […]
To raise awareness on epilepsy and reduce the social stigma around it, author Preeti Singh unveiled her book, Of Epilepsy Butterflies. The book encapsulates stories of eight people afflicted with epilepsy, including the author, who was diagnosed with the brain disorder at the age of two. Placing emphasis on the need to break down existing […]
