Category: "SUDEP"

Beloved Scots gran dies in street after epileptic seizure as partner desperately tried to resuscitate her

Beloved Scots gran dies in street after epileptic seizure as partner desperately tried to resuscitate her

Jamie Low, 42, had been walking the short distance home from a friend’s house in Dundee when she collapsed. A beloved mum of two died in the street after suffering an epileptic seizure while walking home from a friend’s house in Dundee. Jamie Low, 42, collapsed on Saturday night in front of her partner Ally Ramsay who tried […]

Ottawa family struggles to access lifesaving drugs for daughter with rare form of epilepsy

Ottawa family struggles to access lifesaving drugs for daughter with rare form of epilepsy

An Ottawa family is desperate for help, searching for a potentially lifesaving medication for their four-year-old daughter. Zara Wathra suffers from a rare and serious form of epilepsy, which could send her into a fatal seizure at any moment. Zara’s condition has worsened in the last month – she has frequent seizures and her parents […]

New hope for patients with rare epilepsy

New hope for patients with rare epilepsy

Thousands of children face seizures, developmental delays, and possible death from Dravet Syndrome. A new treatment built on Michigan Medicine research could help. Zain Tello grips a flyswatter, his big, brown eyes widening as he pretends it’s a double-bladed ax, just like Paul Bunyan’s. He loves tall tales, like Bunyan and John Henry, says his […]

Don’t Miss Tomorrow Night… Epilepsy Association “Zoom-Learn-Ask”

Don’t Miss Tomorrow Night… Epilepsy Association “Zoom-Learn-Ask”

Click on the link below to join https://us02web.zoom.us/j/88326176138?pwd=L0ZCNS9Cd2Jtakp2dDgyRmZxcXhwdz09  

Soticlestat, A New Potential Treatment for Epilepsy It Inhibits Cholesterol Catabolism

Soticlestat, A New Potential Treatment for Epilepsy It Inhibits Cholesterol Catabolism

Soticlestat, a small molecule that inhibits the activity of cholesterol 24-hydroxylase, one of several enzymes responsible for catabolism of cholesterol, has the potential to translate into a useful therapy for epilepsy, but more research from clinical trials are needed, experts said. A compound that inhibits cholesterol catabolism has potential as an antiseizure drug, according to […]

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