Category: "Human Interest Epilepsy"

Hot tips for coping in the heatwave

Hot tips for coping in the heatwave

A survey* carried out by the Epilepsy Society showed that 62 per cent of people with uncontrolled seizures experience an increase in their seizure activity during unusually hot weather. In the current heatwave, it is important to make sure that you take sensible precautions to ensure that you stay cool, particularly if you know your […]

What is Sandifer syndrome?

What is Sandifer syndrome?

Sandifer syndrome a rare disorder that usually affects children up to the ages of 18 to 24 months. It causes unusual movements in a child’s neck and back that sometimes make it look like they’re having a seizure. However, these symptoms are usually caused by severe acid reflux, or gastroesophageal reflux disease (GERD).   What are […]

My Take: Several of our heroes lived with disabilities and flourished

My Take: Several of our heroes lived with disabilities and flourished

Independent Living is as American as Apple Pie and Parades on the Fourth of July. Two hundred and forty-six years ago, a document composed by a man with a learning disability changed our nation forever. Historians believe that Thomas Jefferson, the brilliant writer of the Declaration of Independence, had dyslexia. So did our first president, […]

Living with a disability made me who I am

Living with a disability made me who I am

Growing up with epilepsy, I had never considered myself a disabled person because I hated the pity people glommed onto me and just wanted to be like every other kid. My seizure disorder changed how I grew up in a multitude of ways. There were childhood experiences I didn’t quite get to have, jokes made […]

Identifying Pure Sleep Epilepsy After a First-Ever Seizure From Sleep

Identifying Pure Sleep Epilepsy After a First-Ever Seizure From Sleep

After a first-ever seizure from sleep, most patients will have another seizure. Two-thirds will develop pure sleep epilepsy, which impacts driving eligibility. Pure sleep epilepsy is traditionally defined as an “established pattern of seizures purely from sleep.” This retrospective and qualitative definition is difficult to apply in clinical practice and to use when developing guidelines […]

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