Alumni family takes on rare disease research to cure their child. There’s an old saying in medicine when diagnosing patients: “When you hear hoof-beats, think horses, not zebras.” But our sweet baby boy, Tristan, is a zebra. He’s one of only 50 in the world. There are 20,000 genes and 3.2 billion nucleotides, and he […]
May 05, 2023 | Epilepsy, Human Interest Epilepsy, Neurology, News, Research, Seizures, Support
LIFE with epilepsy won’t get in the way of this Wickford woman from doing anything she puts her mind to. Around 630,000 people in the UK are living with epilepsy. Emma Evens is one of them. Emma, from Wickford, was diagnosed with the condition when she was just six years old; learning as a teenager […]
May 03, 2023 | Causes, Epilepsy, Human Interest Epilepsy, Mental Health, Seizures
Videos that feature flashing lights or strobe effects can be annoying to almost everyone, but for people with epilepsy those type of videos can be potentially dangerous. The iPhone and iPad have a handy accessibility feature that will automatically detect and dim any flashing lights or strobe effects when seen in videos. How to […]
May 02, 2023 | Epilepsy, Human Interest Epilepsy, Seizures
Stigma affects all aspects of epilepsy care, from diagnosis and treatment to nationwide legislation and budget allocations. It affects the lives of people with epilepsy when they are not given equal access to education, employment, and social opportunities. A population-based study in the United States found that one-third of respondents identified stigma-;not seizures-;as the most […]
May 01, 2023 | Causes, Epilepsy, Human Interest Epilepsy, Research, Seizures, Support
The Spandau Ballet star has been open and honest about his battle with brain tumors and the long term effects they have left him with, including epilepsy and dyslexia Martin Kemp is well known for being part of band Spandau Ballet and for his role as Steve Owen in Eastenders. Married to former Wham! star […]
April 27, 2023 | Epilepsy, Human Interest Epilepsy, Surgery
Surgery is a cost-effective treatment for drug-resistant epilepsy, with limited evidence suggesting that VNS, RNS, and DBS are too. In patients with drug-resistant epilepsy (DRE) considered surgically eligible, epilepsy surgery is shown to be a more cost-effective treatment than standard medical management. These are the findings of a systematic review published in Neurology. Patients with DRE […]
April 24, 2023 | Human Interest Epilepsy, Surgery, Technology