5 Things You Should Know about SUDEP 1. SUDEP is not well understood. SUDEP stands for “Sudden Unexpected Death in Epilepsy”. It refers to deaths in people with epilepsy that are not from injury, drowning, or other known causes. Most, but not all, cases of SUDEP happen during or right after a seizure. Researchers do […]
June 06, 2022 | Epilepsy, Epilepsy in children, Featured Slider, News, Research, Seizures, SUDEP, Support
Angry families have slammed cuts to a “lifeline” summer service at a school for kids with additional needs. They hit out after East Renfrewshire Council cancelled two weeks of holiday activities at Isobel Mair School, in Newton Mearns, for more than 100 primary and secondary pupils. The cost-cutting move means the sessions will now only […]
June 02, 2022 | Autism, Epilepsy, Epilepsy in children, Featured Slider, Human Interest Epilepsy, News, Seizures, Support
Global biopharma company UCB says the UK’s National Institute for Healthcare Excellence (NICE) has issued a positive Final Appraisal Determination (FAD) for its FINTEPLA (fenfluramine) oral solution. FINTEPLA is used for the treatment of seizures associated with Dravet syndrome as an add-on therapy to other anti-epileptic medicines for patients two years of age and older. […]
June 02, 2022 | Epilepsy, Epilepsy in children, Epilepsy Syndromes, Medicine, Research, Seizures, SUDEP, Technology
A study of animal and human brains uncovered what causes infantile spasms and identified a hormone that could be used to treat and alleviate symptoms. By studying the brains of infantile spasm (IS) patients and animal models, John Swann’s laboratory at the Jan and Dan Duncan Neurological Research Institute at Texas Children’s Hospital (TX, USA) observed […]
May 31, 2022 | Epilepsy, Epilepsy in children, Research, Seizures, Technology
Demmi Connonlly (left) and Darrel Stephenson showcase a puppet show that educates and entertains children about epilepsy. It runs at the International Children’s Festival of the Arts from June 2 to 5. Children with epilepsy often face numerous personal challenges. There is the fear of repeatedly dealing with the physical effects of seizures, side effects from […]
May 30, 2022 | Epilepsy, Epilepsy in children, Human Interest Epilepsy, News, Seizures
Summary What is already known about this topic? Seizures or epilepsy account for 1% of annual emergency department (ED) visits. Data on seizure- or epilepsy-related ED visits during the COVID-19 pandemic are limited. What is added by this report? Weekly seizure- or epilepsy-related ED visits decreased sharply during the early pandemic period among all age […]
May 27, 2022 | Epilepsy, Epilepsy in children, Epilepsy in seniors, Epilepsy in women, Epilepsy Syndromes, Featured Slider, Human Interest Epilepsy, News, Research
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