It’s estimated that about 3.4 million people in the United States have active epilepsy, and that about 1 in 26 people will develop epilepsy at some point in their lifetime. That’s why it’s important to understand the condition, including treatment and management options, and when to seek medical care for yourself or someone else. What […]
Aug 22, 2023 Rapid genome sequencing (rGS) testing is feasible to facilitate early diagnosis among infants with new-onset epilepsy, according to a study. The international, multicenter pilot cohort study is published in The Lancet Neurology.1 “The status quo has been to treat seizures like a symptom and try to find medications that alleviate them,” Annapurna Poduri, MD, […]
A mum from Wiltshire is calling for major supermarkets to introduce trolleys with seats for children with disabilities. Rachel Mead, from Melksham, has a 16-month-old son, who has two variants of TBCK syndrome. A rare degenerative brain disorder, it affects Drae’s central nervous system. Ms Mead has now written about the problem with existing designs to […]
The lives of many parents with special needs children are marked by dividing and conquering. One parents stays home while the other goes out. One parent is focused on the child while the other cooks or cleans or works. One parent here, the other there. Split focus. Life becomes separate, a little isolating — sometimes […]
ORLANDO, Fla. — As students head back into the classroom for a new school year, some may be taking ongoing challenges — like health concerns — with them. A Harris Poll on behalf of the nonprofit On Our Sleeves Movement for Children’s Mental Health found that 71% of American parents say their children experienced challenges last school […]
Epilepsy looks different depending on the person, but here are some strategies for managing symptoms and staying safe. LANDIS WIEDNER JUN 4, 2021 9:00 AM AS VACCINATION RATES rise and municipalities begin to reopen, remembering simple social behaviors—like making small talk with co-workers or hugging a parent hello—is suddenly baffling. For people with chronic illness like me, […]
