Welcome to EpilepsyU.com a social network dedicated to the epilepsy community

Webinar Archives

Webinar Archives

Medical Marijuana in Florida Webinar with Dr. Florete of Knox Medical

Various Causes of Epilepsy and Specialized Treatments with Dr. Lee

CBD for Epilepsy – Epidiolex Webinar with Dr. Le

Catamenial Seizures with Dr. Denise Taylor

Women’s Only Webinar With Dr. Denise Taylor

VNS Therapy with Dr. Ahmed Sadek

Women’s Issues with Neurological Treatments and Medications with Dr. Denise Taylor

Q&A With Dr. Sadek Of Orlando Epilepsy Center and Monitoring Unit – PURPLE DAY KICKOFF WEBINAR

Chuck Carmen, Director of EACF and Founder of EpilepsyU and Dr. Ahmed Sadek, Director of Orlando Epilepsy Center and Monitoring Unit take user submitted questions about epilepsy, SUDEP, AEDs, and more.

Q&A with Dr. Ronald Davis of Pediatric Neurology, P.A.. Dr. Davis responds to user submitted questions asked by Chuck Carmen, Executive Director of the Epilepsy Assoociation of Central Florida

Q & A with Dr. Davis of Pediatric Neurology, P.A. from Epilepsy Association on Vimeo.

“Neuropsychology and Epilepsy” with Dr. Lisa Gibbons, PhD of Arnold Palmer Hospital for Children

Neuropsychology and Epilepsy with Dr. Lisa Gibbons, PhD of Arnold Palmer Hospital for Children from Epilepsy Association on Vimeo.

“Living with Epilepsy” with Dr. Ahmed Sadek of the Orlando Epilepsy Center, interviewed by Chuck Carmen, Executive Director of the Epilepsy Assoociation of Central Florida

Chuck Carmen, Executive Director of the Epilepsy Assoociation of Central Florida discusses the Ketogenic Diet and the Modified Atkins Diet with Dr. Jana Kojic, MD and Kelly B. Urbanik, RD, LD/N, CSP of Arnold Palmer Hospital for Children.

Surgery Options for Epilepsy and Technological Advancement with Dr. J. Baugartner

Click here or the picture to view recording from April 10, 2012.

Epilepsy 101 for Parents with Dr. Ki Hyeong Lee.

Produced by Florida Hospital For Children, January 18, 2012

Women’s Issues and Epilepsy with Dr. Denise Taylor.

Webinar air date August 25, 2011 @ 6pm.

Click here to view upcoming webinars!


  1. I Just watched the hour long webinar with Dr. Lee. I didn’t realize this was on here until now. It was extremely comprehensive and informative! I will definitely be recommending it to new parents in the FB support group I’m in. I *really* wish we could have found something like this when our daughter was first diagnosed. We spent two years without even knowing what kind of seizures she was having, without a treatment plan, and without any idea of what questions we should be asking her neurologist! Luckily, we were able to take her Dr. Lee, who finally able to diagnose the cause of her seizures, which several neurologists and epileptologists missed.

    • Katie, my daughter was diagnosed with epilepsy 3 years ago when she was 3. We still do not have a diagnosis of the cause for her seizures. Besides a perfect ‘cure’ of no seizures, knowing her diagnosis would be wonderful. Congratulations to you and your family! I am sure it came as a weight off your shoulders just to have a name to call it.

    • I don’t think there is always a clear cause, but if it’s been 3 years and your daughter has tried two meds and is still having seizures, I would definitely follow Dr. Lee’s advice and get her to an epileptologist/level 4 epilepsy center! There is a *huge* difference between a pediatric neurologist and a pediatric epileptologist, who has tons of extra training specifically in all forms of pediatric epilepsy. I wish I had known this sooner, but we had no clue Abby wasn’t getting the best care until we finally got her to an epileptologist and saw the huge difference.
      And yes, knowing the cause is a relief since we are no longer on a search for answers, but it’s a double edged sword, because now we also know it’s not something she will grow out of.
      I’m just so glad this webinar is on here for families!

  2. Epilepsy chat room every wednsdaynight and every saterdaynight from 7:00-10:00 PM est. Follow this link http://Epilepsybrainstorms.org/, scroll down the page and follow the directions into the chat room.

    Brain Surgery Chatroom from those whom have had epilepsy in the past,new members are always welcome.weve been there 20 years and will continue to educate those whom have had epilepsy and those whom have not had epilepsy but willing to learn.

    We are here to educate
    and enlighten people who are considering brain surgery,
    Vagus Nerve Stimulator, Gamma Knife Radiosurgery,
    and External Responsive Neurostimulator System surgery.
    We have many members who have experienced epilepsy for
    years in many ways. Some have had surgery or other
    procedures and have had great success. Others are still
    battling seizures on a daily basis. We are merely here to
    offer support and to encourage others to never give up.

    There has never been a fee required to join Epilepsy Brainstorms chat sessions and there never will be. We just want to ask those that are able to please consider a contribution to help fund the cost of running a website. The Donate button will redirect one to PayPal which provides a wide choice of pay methods. Thank You very much.

    If you are willing to learn, we are willing to teach. Our chat room is always open, but our two
    scheduled chat rooms are held every Wednesday and Saturday night from 7:00-10:00 PM est.

    “Changing the misconceptions society has about epilepsy, by educating one person at a time”…Lisa-Marie Kinsman

  3. how often do the leads break?

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