Welcome to EpilepsyU.com a social network dedicated to the epilepsy community

Activity

  • Leila posted an update 6 years ago

    No seizure activity for a year since the change to the new medication!!

    • Leila replied 6 years ago

      I was taking regular depakote, but we increased the dosage a bit as well as changing to Depakote ER. I read, after the change in medication, that when a woman is going thru or has gone thru hormonal changes like menopause that the medication I had been taking for years, & had no problems, could possibly not work as well anymore. I feel a sense of freedom that I haven’t had in many years! For nearly 20 years I’ve had to make sure I ALWAYS got 8hrs of sleep & got up 2 hrs before I had to be to work so I could slowly acclimate. I had to be awake at least 30min before I could eat even a bowl of cereal or take a shower without jerking.
      Now I sleep a normal 6-8 hrs, wake up, & can be in the shower within 10min after waking like anyone else!! Ahhh, simple pleasures in life 😀

    • I’m happy for you! We should all be so fortunate!

      • Leila replied 6 years ago

        Yes, Nancy… I know I’m a very fortunate person in regards to my epilepsy & I’m very thankful for that. I wish the same for all others. I went thru 2 years of taking phenobarbital when I was initially diagnosed. I went from being a VERY active kid to taking naps every day like a pre-schooler. Finally a wonderful Air Force doctor in Weisbaden who had trained at Johns Hopkins Hospital got me on Tegretol & I was on that for years before switching to Depakene & eventually Depakote.

Lost Password

Register