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Support Group For Parents

Public Group active 2 weeks, 6 days ago

This support group is intended to be a home for parents who have children with epilepsy. Please meet, share, discuss and connect with others like you!

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  • Profile picture of michele_sheppard

    Michele Frassetto Sheppard joined the group Group logoSupport Group For Parents 2 weeks, 6 days ago

  • Profile picture of Scott Strausser

    Scott Strausser joined the group Group logoSupport Group For Parents 3 weeks, 5 days ago

  • Profile picture of leslie_kesselbullard

    Leslie R. Kessel-Bullard joined the group Group logoSupport Group For Parents 1 month, 1 week ago

  • Profile picture of Carla

    Carla joined the group Group logoSupport Group For Parents 1 month, 1 week ago

  • Profile picture of pamela_boodram

    pamela_boodram posted an update in the group Group logoSupport Group For Parents 1 month, 2 weeks ago

    This is a case on a preschool that refused admission for an epileptic child because they refused to administer Diastat.

    SETTLEMENT AGREEMENT BETWEEN THE UNITED STATES OF AMERICA AND TODDLERS ‘N TOTS, INC.
    http://www.ada.gov/toddlers_n_tots.htm

  • Profile picture of beth_benitez

    Beth Benitez joined the group Group logoSupport Group For Parents 1 month, 2 weeks ago

  • Profile picture of Valeria E. Rodriguez

    Valeria E. Rodriguez posted an update in the group Group logoSupport Group For Parents 1 month, 3 weeks ago

    Does anyone know anything about Magnesium Valporate? Does anyone use it for their kids?

    • Profile picture of Valeria E. Rodriguez
      Chuck Carmen replied 1 month, 3 weeks ago

      Magnesium valproate targets the neurological system, which alters the chemical composition in your brain to help prevent seizures. Valproate Acid has been around for many years as a very good agent to control seizures. According to some studies the addition of magnesium has improved the efficacy of it for certain types of seizures. It is a very…[Read more]

  • Profile picture of Valeria E. Rodriguez

    Valeria E. Rodriguez posted an update in the group Group logoSupport Group For Parents 1 month, 3 weeks ago

    Hello!! My son was diagnosed about a month ago and he is 5 years old.. I saw the first seizure only a month before that… Has anyone else gone through the same thing where your child is completely healthy (that you knew of) for the first 5 years of his life and then out of nowhere he has a seizure? I dont understand that…

    • Profile picture of Valeria E. Rodriguez
      Beth Benitez replied 1 month, 2 weeks ago

      My daughter had her first seizure 5 months ago at age 3. I recently met a girl that had her first seizure at 8. My doctor says the younger they are the better chance that they will grow out of it during high-school. Think of it as a possible blessing that he is so young. I pray your sons seizures are manges by meds.

    • Profile picture of Valeria E. Rodriguez
      Beth Benitez replied 1 month, 2 weeks ago

      **managed

  • Profile picture of Valeria E. Rodriguez

    Valeria E. Rodriguez joined the group Group logoSupport Group For Parents 1 month, 3 weeks ago

  • Profile picture of Maresa Spero

    Maresa Spero joined the group Group logoSupport Group For Parents 2 months ago

  • Profile picture of pamela_boodram

    pamela_boodram posted an update in the group Group logoSupport Group For Parents 2 months ago

    Something has been on my mind. Parents…how do you feel about your child with Epilepsy going away to college? Or are you a parent of a college age student? I will be honest, it scares the daylights out of me and my husband. Luckily our daughter is only 3 so we have some time before that becomes a reality.

    • Profile picture of pamela_boodram
      Beth Benitez replied 1 month, 2 weeks ago

      I haven’t thought that far ahead. My daughter is also 3. I moved her in my room in fear of not knowing if she has a seizure. I couldn’ imagine sending her off.

  • Profile picture of Dana

    Dana joined the group Group logoSupport Group For Parents 2 months ago

  • Profile picture of Marni Milks

    Marni Milks joined the group Group logoSupport Group For Parents 2 months, 3 weeks ago

  • Profile picture of teresa_ngan

    teresa_ngan joined the group Group logoSupport Group For Parents 4 months, 3 weeks ago

  • Profile picture of Linda Lloyd

    Linda Lloyd joined the group Group logoSupport Group For Parents 4 months, 4 weeks ago

    • Profile picture of Linda Lloyd
      Chuck Carmen replied 4 months, 3 weeks ago

      Linda, I do hope some of the other parents with us here in the U can help you on the tremors with some answers for you and your son.

    • Profile picture of Linda Lloyd
      pamela_boodram replied 4 months, 3 weeks ago

      Welcome Linda. I didn’t see where your original post was. Can you tell me what your questions are?

    • Profile picture of Linda Lloyd
      Linda Lloyd replied 4 months, 3 weeks ago

      Hi Pamela..it was actually in reply to another persons post asking if anyone else’s child had tremors. I was just chiming in that mine did but we didn’t really have a good explanation as to why. I believe they’ve become worse lately with meds

    • Profile picture of Linda Lloyd
      pamela_boodram replied 4 months, 3 weeks ago

      I am sorry to hear that. I hope that you find an answer to your questions.

  • Profile picture of pamela_boodram

    pamela_boodram posted an update in the group Group logoSupport Group For Parents 4 months, 4 weeks ago

    How was everyone’s Christmas??

    • Profile picture of pamela_boodram
      Chuck Carmen replied 4 months, 4 weeks ago

      Great and thanks for asking. How was yours? Happy New Year.

    • Profile picture of pamela_boodram
      pamela_boodram replied 4 months, 4 weeks ago

      We had a wonderful Christmas too! Sabrina didn’t have a seizure on Christmas Eve or Christmas Day which was a wonderful gift to us all! We were able to take her to her first Christmas Day Mass which she enjoyed. I am ready for 2012 to be over with so we are making the best of these final days. Happy New Year to you and your family!

    • Profile picture of pamela_boodram
      Chuck Carmen replied 4 months, 4 weeks ago

      I saw where she went to Mass with you. I am so happy she didn’t seize for all of you this Christmas! How wonderful, I will pray that it keeps up for her and you both.

  • Profile picture of Jim Belcher

    Jim Belcher posted an update in the group Group logoSupport Group For Parents 5 months ago

    Hello there. Our 3 year old son was diagnosed with epilepsy 5 months ago after he suddenly started having seizures (3-4 a day) Up until then, we didn’t notice anything except maybe some times when he “zoned out”. His seizures have been classified as “complex partial seizures”. Mainly in his neck/face region.
    He was originally prescribed Keppra.…[Read more]

    • Profile picture of Jim Belcher
      pamela_boodram replied 4 months, 4 weeks ago

      Welcome to the “U” Jim. I am sorry to hear about your sons diagnosis and difficulties finding the right medication. Unfortunately with Epilepsy there doesn’t always seem to be just one medication that will work, most of the time he will need a “cocktail” of drugs to help. My daughter is 3 1/2. She has Epilepsy, was diagnosed at almost a…[Read more]

  • Profile picture of Jim Belcher

    Jim Belcher joined the group Group logoSupport Group For Parents 5 months ago

  • Profile picture of Chuck Carmen

    Chuck Carmen posted an update in the group Group logoSupport Group For Parents 5 months ago

    As a parent of a child with epilepsy if you had to share one thing with other parents want you have learned what would it be?

    • Profile picture of Chuck Carmen
      pamela_boodram replied 4 months, 4 weeks ago

      I’m not sure I fully understand the question…one thing that I have learned that I would share with other parents (maybe that just found out that their child has Epilepsy) is that there is a huge support network out there. The “U”, your local Epilepsy Association, social networks etc. You don’t ever need to fee alone. It is scary at times…[Read more]

    • Profile picture of Chuck Carmen
      Chuck Carmen replied 4 months, 4 weeks ago

      Thanks Pamela. That is exactly the kind of answers I would love people to share with others that are new to this.

  • Profile picture of Sarah Wright

    Sarah Wright joined the group Group logoSupport Group For Parents 5 months ago

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