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(PNES) Man battling illness that manifests itself through seizures

For Nathan Koops, the middle of 2016 brought on more than his mind could take. His family fled for their lives during the Fort McMurray wildfire in May, only for Nathan to be called back a few days later to fight The Beast.   “Shortly after that, our daughter was born, which was sudden and traumatic,” Nathan said, explaining that his wife had an unplanned C-section and a very difficult delivery.

Her Seizures Looked Like Epilepsy, But Her Brain Looked Fine

When Sarah Jay had her first seizure, she was in her mid-20s and working a high-stress job at a call center in Springfield, Mo. “I was going to go on break,” she says. “I was heading towards the bathroom and then I fell and passed out.”   An ambulance took Jay to the hospital but doctors there couldn’t find anything wrong. Jay figured it was a one-time thing. Then a week later, she had another seizure. And that kept happening once or twice a week.   “So I was put on short-term disability for my work to try to figure out what was going on,” says Jay, who’s now 29.   The most likely cause for her seizures was abnormal electrical activity in her brain. In other words, epilepsy.   But Jay’s doctors wanted to be sure. In May 2013, they admitted her to a hospital epilepsy cen...

Firefighter battling little-known condition brought on by extreme trauma (PNES)

Doctors accused Nathan Koops of faking his seizures before it was finally diagnosed as PNES’Lot’s of different times I would see him drop to the floor having a seizure’. Nathan Koops would convulse violently in front of his wife, their five-year-old son and newborn daughter. One seizure struck while Koops was walking home with son Owen from the grocery store. It left him paralyzed on the sidewalk as Owen ran home to get help. “Everything in my body wanted to move inwards,” Koops said. “My arm would move in. My arm would curl in and the muscles would contract. My leg would do the same thing. My body would arch. And it felt like it would be pushed past its bounds.”

Non-Epileptic Seizures Tied to Less Stress-Reducing Hormone

A new Danish study finds that people who suffer from psychogenic non-epileptic seizures (PNES) — a condition characterized by spasms similar to epileptic seizures but which are unexplained and untreatable — have a lower level of the hormone neuropeptide Y (NPY) in their blood.   NPY is a hormone associated with an increased resilience for dealing with stress.

Post TBI Seizures Often Misdiagnosed as Epilepsy, but are Actually PNES

A new study by a Rhode Island Hospital researcher has found that traumatic brain injury (TBI) can significantly increase the odds of having major depression, personality impulsivity and post-traumatic stress disorder (PTSD) in patients with psychogenic nonepileptic seizures (PNES). The paper, by W. Curt LaFrance Jr., M.D., M.P.H., director of neuropsychiatry and behavioral neurology, is published online in advance of print in the journal Epilepsia. “Some patients who sustain a TBI develop seizures,” LaFrance said. “Very often, these seizures are believed to be epileptic in nature, and the patient, therefore, is treated for epilepsy. Later the seizures are found to be PNES. This study demonstrates the prevalence of co-morbid mild TBI and PNES, which could suggest that some...

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