Welcome to EpilepsyU.com a social network dedicated to the epilepsy community

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Partnering to improve patient-neurologist dialogue about epilepsy

Digital Health Solutions, Child Neurology Foundation and Greenwich Biosciences begin work to create high-tech risk-screening tool    Experts in academia, patient advocacy and the health care industry have begun a partnership to improve communication about epilepsy between pediatricians, pediatric neurologists and the families of pediatric patients.   Epilepsy is a brain disorder that causes seizures. The Centers for Disease Control and Prevention reports that almost 3.5 million Americans had active epilepsy in 2015, including 470,000 children. In a 2017 guideline, the American Academy of Neurology urged health care providers to report risks associated with the condition to caregivers of children living with epilepsy. Those risks include sudden unexpected death in epilepsy, or SUD...

Disability is not Black and White

To the Author of the Anonymous Note Left on My Car Window: I think I recognize you… I do. Before becoming a Mom, I used to live in your world of black and white, with everything in order, in its place. I had a plan, a schedule, a list of finished projects to check off, checklist and all. How wonderful for you that your life is so structured, so dependable and predictable that you cling to that line dividing right and wrong, black and white, and that you feel compelled to comment when you think someone is coloring outside the lines. This time, though, in your hurry to keep things neat and orderly, you didn’t see the whole picture. I guess you didn’t see the accessible permit hanging from my car mirror, giving me permission to park close to the entrance. You didn’t se...

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