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Antiepileptic Drug Changes May Negatively Impact Emotions

An epilepsy patient’s emotional well-being may be negatively impacted when changes are made to their antiepileptic drug (AED) regimen. These are the findings from a study published online in the journal Epilepsy and Behavior. In order to understand how AED changes affect patient emotions, researchers asked members of an online epilepsy community to participate in an online survey which consisted of 31 questions that rated their feelings on a recent AED change. In addition to the survey results, comments from epilepsy-related online forums and social media websites where people expressed their experiences with AED changes were also analyzed (termed passive listening statements).

AGH helms epileptic study

In the United States, one out of 26 people will be diagnosed with epilepsy at some point in their life, according to the Epilepsy Foundation. This chronic neurological condition causes seizures that severely affect a person’s awareness, consciousness, actions and physical movements. The way that epilepsy can be managed is through different medications that can help control the seizures. Medications also become important if someone is having a seizure, and knowing which one will work the quickest and safest is key. This is why 39 medical centers across the United States have agreed to join The Established Status Epilepticus Treatment Trial to determine the best way to treat prolonged seizure patients who come into emergency departments.

Young people with epilepsy are more than twice as likely to be poisoned by medication

Children and young adults with epilepsy are more likely to suffer broken bones, burns and poisonings compared to those without the neurological disorder, new research has found. The study, led by academics at The University of Nottingham and funded by the National Institute for Health Research, shows that young people with the condition are at significantly greater risk of being poisoned by medication, leading the authors to call for further research into whether these poisonings are intentional. The results, taken in tandem with previous research findings, highlight the need for further research into whether young people with the condition are at greater risk from an overdose, accidental or intentional, of their epilepsy drugs or other medication. And the researchers say that doctors and ...

Harvard stem cell scientists discover potential treatment for amyotrophic lateral sclerosis

Discovery will lead directly to clinical trials Harvard stem cell scientists have discovered that a recently approved medication for epilepsy may possibly be a meaningful treatment for amyotrophic lateral sclerosis (ALS)-Lou Gehrig’s disease, a uniformly fatal neurodegenerative disorder. The researchers are now collaborating with Massachusetts General Hospital to design an initial clinical trial testing the safety of the treatment in ALS patients. The investigators all caution that a great deal needs to be done to assure the safety and efficacy of the treatment in ALS patients, before physicians should start offering it. The work, laid out in two related papers in the April 3 online editions of Cell Stem Celland Cell Reports, is the long-term fruition of studies by Harvard Stem Cell ...

Cannabis: The First-Line Medication For Treating Childhood Epilepsy?

“A little less panicky, but more tired than ever before.  So violent with biting, hitting and scratching, ripping the leads off, and just wanting to crawl out of his skin with not being able to sit still…. No sleep for either Jaxs or I. Every time he fell asleep, then 20 minutes later a seizure. So, he fought sleep and had that panicked ‘I am dying’ fear in his eyes that expressed so much confusion and loss at what was happening. Most helpless I have felt so far in 14 years.” -From the journal of Jennie Stormes   The words are chilling, heartbreaking, every parent’s worst nightmare. Jaxs hasDravet Syndrome, a rare, incurable form of severe childhood epilepsy.

Life with epilepsy goes on.

Epilepsy places limitations on a person but with modern medication and the right attitude it can be controlled and a person can enjoy a fulfilling life.

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