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#EpilepsyAwareness

Student Educates Classmates On Epilepsy

(Special Note: Great job Taylor and we love you using our exclusive EpilepsyStore.com Epilepsy Awareness Purple Ribbon Flag.  Keep up the wonderful work you are doing up there in Canada Taylor!  Love it!  EpilepsyU.com)   A 10-year-old girl is leading her peers in becoming more aware about epilepsy.   Taylor Burk, a Grade 5 student at Indian Creek Road Public School, has been doing announcements at school every day for the past week or so regarding facts on epilepsy. Students who paid attention during the announcements were then given a little “quiz” on Monday — which was also Epilepsy Awareness Day.

March 26 is PURPLE DAY!

Epilepsy is the most common serious neurological condition in the world. An estimated 50+ million people across the globe are currently living with seizures. Epilepsy is more than three times as common as multiple sclerosis, Parkinson’s disease and cerebral palsy. Sadly however, due to the longstanding social stigmas and misconceptions associated with epilepsy, many people do not disclose their condition. This of course has lead to low community awareness about epilepsy. Every year, epilepsy awareness is bolstered and honored in two special times; Purple Day (March 26), and Epilepsy Awareness Month (November). Purple Day is just 3 days away and we want all of you to WEAR PURPLE in support of Epilepsy Awareness!

‘Landmark’ study confirms cause of epilepsy related to mortality risk

By Eleanor McDermid, Senior medwireNews Reporter A “landmark” meta-analysis confirms the increased mortality risk in patients who have symptomatic or cryptogenic epilepsy. The study by Olli Nevalainen (University of Tampere, Finland) and colleagues included data for 165,879 patients from 38 epilepsy cohorts studied over the past 40 years, the majority (79.6%) of whom were from Nordic countries. Overall, patients’ mortality risk was elevated about threefold relative to the general population, the team reports in Neurology. However, the risk varied according to the aetiology. Patients with idiopathic epilepsy did not have a significantly increased mortality risk, whereas it was elevated 1.75-fold among patients with cryptogenic epilepsy. Mortality risk was not elevated among patients with in...

You are important to people with epilepsy

November is Epilepsy Awareness Month. Epilepsy is a unique condition. Ancient civilizations wrote about it and treated it, and it continues to affect part of our population today. One in 10 people will have at least one seizure at some point in his or her lifetime. This means that everyone knows someone who will or has had a seizure. The condition can start at any point in time; sometimes the seizures of epilepsy occur in response to a head injury or disease. Other times there is no known reason for their occurrence. There are many different causes and many different treatments for epilepsy. Medication is the usually the first response. One or more medications may be needed to control the symptoms. The use of a vagus nerve stimulator may also be helpful. This is a small technological devic...

5 DAYS AWAY: November is Epilepsy Awareness Month!

EpilepsyU wants the stories page to go viral in the month of November for Epilepsy Awareness Month! November is Epilepsy Awareness Month, and we want everyone to share their epilepsy story! We will edit and post as many as we can each day, we already have over 50 stories posted at ‘EpilepsyU Stories‘ (http://epilepsyu.com/stories). Please share your story (http://epilepsyU.com/share), share this post and remember to wear purple in the month of November!   If you have a charity event, or fundraiser that we can share, here at EpilepsyU, please let us know, we will update this page with Epilepsy Awareness events throughout the month of November! Our Blog and Facebook posts reach viewers all over the world and we will happily share your event!

SURVEY: Caregivers more aware of SUDEP than patients

Sudden unexpected death in epilepsy (SUDEP) is concerning and many—even those with seizure disorders—may not be aware of this condition. New research published inEpilepsia, a journal published by Wiley on behalf of the International League Against Epilepsy (ILAE), reports that 76% of caregivers are more likely to have heard of SUDEP compared with 65% of patients with epilepsy. Dr. Barbara Kroner, an epidemiologist with RTI International in Rockville, Maryland and lead author of the study says, “When someone with epilepsy dies suddenly we want to understand why. Our research calls attention to SUDEP and provides important knowledge to help neurologists have open discussions with patients, especially those at greatest risk of epilepsy–related death.” While it is obviously an over...

VIDEO: Neurologists research answers to concussion questions

AUSTIN — The future of Longhorn David Ash remains uncertain — after another concussion during Saturday night’s game against North Texas. Ash missed most of last season due to concussions as well. Despite following the standard return to play protocols, neurologists and health experts we talked to say there really isn’t any hard and fast number when it comes to how many concussions are too many. During the week, Juli Castro works as the Director of the Departments of Medicine at Baylor Scott & White Round Rock. The burnt orange memorabilia in her office – including national championship photos under glass – lets you know every Saturday in the fall she’s a passionate Longhorns football fan.

Teen Fights to Increase Epilepsy Education in His State

Drake Abramson described himself as a kind of painter when talking about living with complex partial seizures, a form of epilepsy. “I was depressed for a while, but one day (after being diagnosed), I was like, ‘What I am doing? Why am I getting so down on myself?’” Abramson said, breaking into a wide grin. “I’m my own painter, so let me paint everyone an image of myself. I grabbed my paintbrush, and I just started painting away.” Along with epilepsy, the “colors” on the tall, popular Lake Station Edison sophomore’s palette include being a high school wrestler, trombone player in band and, more and more, a fundraiser able to draw the attention of U.S. congressmen and senators, mayors and the governors of Indiana and Illinois. “I’m just like everyone else,” Abramson said, pointing to a purpl...

EPILEPSY AWARENESS: Mother Calls For Epilepsy Awareness Around Water

In a split second, Sandrine Baun’s son Jeremy was in crisis. The 8-year-old was playing at the water’s edge of a local swimming area with his two sisters when he began convulsing. Baun said she had turned her head for a moment and when she looked back, Jeremy, who has epilepsy, was flailing helplessly. To the lifeguards nearby, the grand mal seizure didn’t look much different from the other kids’ playful splashing, Baun said. That’s what worries Baun. Baun went to help her son but had trouble pulling him out of the water. She called for the lifeguards, who helped carry him to her beach towel so he wouldn’t hurt his head, but left soon after and didn’t offer further assistance.

Let’s Shift Our Language When Talking About Epilepsy

As a child, Gena’s classmates gave her a hard time for being short, for wearing glasses, and for being “an epileptic.” She didn’t fully understand her seizures or what they meant, but she quickly learned that being “an epileptic” made her the subject of ridicule. Gena’s family, on the other hand, never called her that. Instead, they talked about her seizures. When she had a bad day with epilepsy, they would simply say, “Gena is seizuring today” much like they might say, “Gena is running.” Gena thinks of it as a “friendly, open wording that we created for ourselves.” As an adult, Gena made a conscious decision not to call herself an epileptic because it reduces her identity to her neurological disorder. She explai...

Jerry Kill speaks about his epilepsy

ROCKVILLE – Jerry Kill said he has never been comfortable talking about epilepsy. After a seizure during a game last September, his fourth since taking over as the University of Minnesota’s football coach in 2011, Kill realized he had to talk about it. His dealing with epilepsy is also one reason why he wound up speaking on Monday evening at the 400 Supper Club before a couple hundred spectators. Proceeds from the banquet benefited the Epilepsy Foundation of Minnesota. “It’s not something I want to talk publicly about a whole lot,” Kill admitted. “I was trying to make a bad situation and make it a positive.” Another reason for his rare visit to the area was to grant a wish for 92-year-old Bob Sandberg through My Bucket List, a Central Minnesota non-profi...

Bicycling advocate, ASL interpreter pedals past epilepsy to speak for others

On a normal day, you are peddling your bike down a heat-warped road. The next thing you know, you wake up, lying on the sidewalk. You look over and see your bike in the right lane of traffic. A man who saw what happened pulls over to make sure everything is OK. You are scraped up but manage to hop back on the bike and ride away. It was just another tonic-clonic seizure. Scratch “normal,” because any day in the life of 37-year-old Haley Ritter is anything but. She has dealt with epilepsy her whole life. Every day she has to carefully choose how her time, energy and resources are used. Living with this condition has not stopped Ritter from making a conscious decision to live with purpose and incorporate her passions into everyday life. Seven years ago, Ritter started attending every city of ...

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