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Charlotte’s Web

CBD Treatment Gaining Legitimacy Through Research

Encouraging results from cannabidiol trial for treatment-resistant epilepsy Cannabidiol (CBD), a medical marijuana derivative, was effective in reducing seizure frequency and well-tolerated and safe for most children and young adults enrolled in a year-long study led by epilepsy specialists at NYU Langone Medical Center. These latest findings provide the first estimates of safety, tolerability and efficacy of prescription CBD in children and adults with severe, highly treatment-resistant epilepsy. Led by Orrin Devinsky, MD, professor of neurology, neurosurgery, and psychiatry and director of the Comprehensive Epilepsy Center at NYU Langone, the study is published in the December 23 issue of Lancet Neurology. While early findings have been released at medical meetings — including the ...

ACCESS TO CBD FINALLY MAKES ADVANCE IN FLORIDA

By the end of 2015, patients in Florida may finally have access to CBD under a bill that was signed into law in November, 2014 by Governor Rick Scott. A judge in Tallahassee dismissed the final challenge to the rule Wednesday night. The Florida Department of Health, which developed the rule, is expected to start accepting applications within three weeks from eligible growers for the strain of marijuana that is low in euphoria-inducing tetrahydrocannabinol, or THC, and high in cannabidiol, or CBD. Growers could start selling to eligible patients who are put on a state-run “compassionate use registry” within months. “Today’s ruling allows the department to move forward with implementing the Compassionate Medical Cannabis Act, approved by the Legislature in 2014,”...

VIDEO: Charlotte’s Web for Epilepsy Consortium

The Epilepsy Association of Central Florida, EpilepsyU and The Realm of Caring Florida present “Charlotte’s Web: A Consortium for Understanding Florida’s Compassionate Care Law” at Concorde Career Institute, Orlando Florida. Filmed November 15, 2014 Featuring: Chuck Carmen, Director, Epilepsy Association of Central Florida Dr. Ngoc Minh Le, Epileptologist, Pediatric Neurology, P.A. Paige Figi, Founder, Realm of Caring and mother of Charlotte Figi Holly Moseley, Co-Fouder, Realm of Caring Florida Special thanks goes to Concorde Career Institute for hosting the event. PART 1 of 3 features Mr. Chuck Carmen giving an intro to epilepsy and the speakers and Dr. Le, Epileptologist with a presentation on CBD trials for Dravet and Lennox-Gasteaut Syndromes. PART 2 of 3 features Holley M...

New Research Will Study Dravet Patients Taking CBD

Matt Figi hugs his 7-year-old daughter Charlotte inside a Colorado greenhouse. The plants are a special strain of medical marijuana known as Charlotte’s Web, which was named for Charlotte after she used the plant to treat epileptic seizures Brennan Linsley—AP In what is believed to be the first study of its kind, researchers at the University of Colorado, Denver will study the genes of those with a kind of epilepsy called Dravet Syndrome who have been treated with a strain of medical marijuana known as Charlotte’s Web. The study will attempt to determine if specific genetic components can explain why some epilepsy patients see positive results from ingesting Charlotte’s Web, while others do not.

The Case For Whole Plant Legislation – Is CBD Alone Good Enough?

In recent months, one strain of cannabis has been talked about, and legalized more than any other; Charlotte’s Web, a strain of Marijuana bred by Realm of Caring, a group of growers and dispensary owners in Colorado, for its high CBD content. CBD is the least controversial Cannabinoid found in the plant, and there are hundreds, if not thousands of stories to support that it can help reduce seizures. An effect of this new media, legislative and social media blitz of coverage on CBD is that people now seem to think that Charlotte’s Web is the only viable source of CBD, and that CBD alone is effective in seizure control, this is leading parents from across the nation to move to Colorado for access to Charlotte’s web specifically, because they believe that is the only legal w...

Florida’s Plan For Medical Cannabis Facilities

Winners of Florida’s five, highly sought-after medical marijuana licenses could be selected through lotteries, according to a draft rule released late Wednesday by the Department of Health. The 16-page document comes in advance of an agency workshop Monday in Tallahassee that is drawing heavy attention. The draft rule, generally considered a starting point, outlines how the state intends to implement a new law, signed by Gov. Scott, that made Florida one of nearly two dozen states that permit some sort of marijuana. Florida’s law restricts legal marijuana to strains that are low in euphoria-inducing tetrahydrocannabinol, or THC, and high in cannabadiol, or CBD. The low-THC, high-CBD strain is purported to eliminate or dramatically reduce life-threatening seizures in children wi...

Potential Cure for Epilepsy: Cannabis Vastly Reduces Seizures in Boy with Dravet Syndrome

Scientists are looking at the potential use of cannabis to treat and potentially cure severe forms of epilepsy. The medical benefits of medical marijuana for neurological conditions like epilepsy are highly debated. Examining the potential use of the drug, a series of articles in the journal Epilepsia, a journal of the International League Against Epilepsy, looks at its potential use for treating the syndrome. Edward Maa, from the Comprehensive Epilepsy Program at Denver Health in Denver, Colorado, looks at a case study of a child with Dravet syndrome – a very severe form of epilepsy. In the case, a mother provided her child with a strain of medical marijuana high in Cannabidiol (CBD) and tetrahydrocannabinol (THC) known as Charlotte’s Web. When used with the child’s normal dru...

EDITORIAL: Hemp oil legislation should help Medicaid expansion in Missouri

(St. Louis Post-Dispatch (MCT)) In a Missouri Legislature obsessed with wedge political issues designed more for enraging conservatives than for solving real-world problems, it’s a rare thing when a lawmaker makes a heartfelt, personal plea that moves his colleagues to support a meaningful issue. Sen. Eric Schmitt, R-Glendale, has had two such moments.

A Second Bill Is Lurking In the Florida House of Representatives

Lawmakers in both chambers are advancing proposals that would open the door for a non-euphoric strain of marijuana that backers believe can dramatically reduce seizures in children with a rare form of epilepsy. But the two proposals take very different approaches toward making the strain of cannabis known as “Charlotte’s Web” available to about 125,000 children in Florida who might benefit from the compound. The Senate plan, passed for the first time in a committee on Tuesday, would legalize the substance. In contrast, the House proposal would not decriminalize the product but would provide individuals arrested, investigated or charged with a crime an “affirmative defense” that they could use to prove their innocence in court. Both proposals deal with Charlott...

Stanford Study Confirms: CBD is an effective treatment for Epilepsy

According to a new survey out of Stanford University, a cannabidiol-rich (high CBD) cannabis extract may be widely effective for children with epilepsy. The survey, published in the December issue ofEpilepsy & Behavior, compiled responses from 18 parents who had turned to a special form of cannabis to treat their child’s severe epilepsy. The work begins now to determine which types of epilepsy CBD is going to help, its side effects, and how it interacts with other anti-seizure drugs. In some cases, parents reported a reduction in seizure frequency of up to 80% and 83% indicated a reduction in their child’s seizure frequency, with little to no side effects of cannabis treatment. Four of the children suffered from Doose syndrome, one had Lennox-Gastaut syndrome, one had idiopathic epilep...

TEDx Talk in Boulder About Medical Cannabis

The surprising story of medical marijuana and pediatric epilepsy Josh will sift through the propaganda, fear and greed encompassing medical marijuana. Recently featured on CNN, Josh and his brothers developed a non-psychotropic strain of marijuana which is drastically reducing seizures for many pediatric epilepsy patients in Colorado. With millions facing life-threatening illnesses, Josh outlines the hurdles needed to effect social change and maps a path toward helping those who desperately need revolutionary medicine.

The Fight For CBD in Utah

(KUTV) A group of Utah parents are trying to change the law, so they can get treatment that might cure their children of epilepsy.April Sintz’s son Issac started having seizures when he was six months old. By the time her son was three, the seizures were so severe, doctors weren’t sure he would walk or talk again. “We are fighting for his life, we are fighting for his quality of life,” says April. April was at a meeting in downtown Salt Lake City Tuesday, where parents met with the Controlled Substances Advisory Board, trying to convince lawmakers to amend interstate commerce laws that prohibit cannabis and hemp products to be transported across state lines.

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