Welcome to EpilepsyU.com a social network dedicated to the epilepsy community

Featured

The 10 best migraine apps

Do you experience frequent and severe migraines? We have selected the best apps to help you deal with migraines based on their quality, reviews by their users, and their effectiveness to log migraine triggers and provide support for individuals living with the condition. A migraine is more than just a headache; it is a complex neurological condition that features a wide range of symptoms, including severe head pain, disturbed vision, sensitivity to light, smells, and sounds, and nausea and vomiting. Most people with a migraine are unable to work or function normally during an episode.

Your neurons register familiar faces, whether you notice them or not

When people see an image of a person they recognize—the famous tennis player Roger Federer or actress Halle Berry, for instance—particular cells light up in the brain. Now, researchers reporting in Current Biology on September 21 have found that those cells light up even when a person sees a familiar face or object but fails to notice it. The only difference in that case is that the neural activity is weaker and delayed in comparison to what happens when an observer consciously registers and can recall having seen a particular image.

Photosensitivity May Indicate CLN Type 2 Disease in Youngsters, Study Suggests

Early photosensitivity may be a hallmark of ceroid lipofuscinosis type 2 (CLN2) disease, according to the results of a small study. The study “Photosensitivity is an early marker of neuronal ceroid lipofuscinosis type 2 disease” was published in the journal Epilepsia. The neuronal ceroid lipofuscinoses (NCLs), or Batten disease, are a heterogeneous group of lysosomal storage disorders that includes, among others, the neuronal CLN2 disease. Patients with this condition, which affects primarily the nervous system, typically develop initial symptoms – recurrent seizures (epilepsy) and difficulty coordinating movements (ataxia) – between ages 2 and 4 years.

What should you do if a friend has a seizure?

Ten percent of people are expected to experience a seizure at some point during their lifetime, but would you know what to do if someone was having a seizure right next to you? Would you recognize it for what it was? Here, we give you an overview of different types of seizures and offer some helpful first aid tips.

Memory decline after head injury may be prevented by slowing brain cell growth

The excessive burst of new brain cells after a traumatic head injury that scientists have traditionally believed helped in recovery could instead lead to epileptic seizures and long-term cognitive decline, according to a new Rutgers New Jersey Medical School study. In the September issue of Stem Cell Reports, Viji Santhakumar, associate professor in the department of Pharmacology, Physiology and Neuroscience, and her colleagues, challenge the prevailing assumption by scientists in the field that excessive neurogenesis (the birth of new brain cells) after injury is advantageous.

Epilepsy drugs pose risks to developing brains, study suggests

Some drugs used to treat epilepsy harm children who are exposed to them in the womb or through breast milk, a new analysis of the literature suggests1. The drug valproate is particularly risky, boosting the likelihood of autism and other developmental problems up to 17-fold. The study is the first to compare the relative risks of taking various epilepsy drugs during pregnancy. Some of these medications are also used to treat bipolar disorder and migraines.

NeuroPace Epileptic Seizure Control System: Interview with Dr. Martha Morrell, CMO of NeuroPace

People with certain types of epilepsy may have the option to use a therapy that doesn’t include drugs. The RNS System from NeuroPace, a company out of Mountain View, California, monitors the brain for signs of an oncoming seizure and stimulates it to disrupt the process. It has been approved in the U.S. for about four years now, and we wanted to find more about how it works and how it’s being used. We had a chance to speak with Dr. Martha Morrell, Chief Medical Officer of NeuroPace, who was kind enough to answer our questions. Medgadget: The NeuroPace RNS system has shown to be effective at reducing seizures in many patients with epilepsy. Can you give us a brief overview of how the system functions?

When do I tell my children I have epilepsy?

you know what a grand mal seizure is? I found out when I was eight years old. I also found out how it felt after having one…a mouth being full of swollen tongue, the taste of blood, and the feeling of being underwater with a throbbing headache. As with most epileptics, doctors have no idea why I have it or what caused it. Mine is not genetic; it may have resulted from one of the many times I thwacked my head as a kid. I liked to hang upside-down on the monkey bars a lot. No surprise that my stampeding hippo brand of grace emerged early, and that I frequently fell from exactly that upside-down position.

Epilepsy and Seizures in Older Adults

Did you know that seizures are more likely to develop in older adults? Learn to recognize the signs of seizures and how you can help. Epilepsy is a broad term used for a brain disorder that causes seizures. In the United States, 2.4 million adults aged 18 years or older have active epilepsy.1,2 About 1% of adults 65 years of age and older have active epilepsy, which is about 447,000 people.1,2 That’s about the size of Corpus Christi, TX. With the aging of the population, we can expect to see greater numbers of people with epilepsy. Epilepsy is more likely to develop in older adults rather than younger adults because as people age, the risk of seizures and epilepsy rises.3,4 Some older adults may have lived with epilepsy throughout their lives, but others might develop epilepsy later in lif...

Self-Management Programs Help with Epilepsy

For 10 years the CDC Managing Epilepsy Well Network has developed innovative programs using e-tools to reach people with epilepsy. Learn how these programs can help your patients with epilepsy better manage their condition. The Importance of Epilepsy Self-Management Epilepsy is a broad term used for a brain disorder that causes seizures. There are many different types of epilepsy and many different kinds of seizures. Epilepsy can get in the way of life, mostly when seizures keep happening. Although there are many drugs to help prevent seizures, they don’t always work. In fact, about one-third of people with epilepsy who are receiving care still have seizures.1 Uncontrolled seizures can increase the risk of injury, anxiety, depression, brain damage, and in rare cases, death. They can also i...

3D printed brain-like tissue for neurotransmitter production

Armed with a 3D printer and bio-ink made from stem cells, Australian scientists have created brain-like tissue in a breakthrough research. The unique bio-ink is composed of human induced pluripotent stem cells (iPSC) – possessing the same properties as embryonic stem cells – capable of transforming into any cell (and organ) in the body.

New method identifies brain regions most likely to cause epilepsy seizures

Scientists have developed a new way to detect which areas of the brain contribute most greatly to epilepsy seizures, according to a PLOS Computational Biology study. The strategy, devised by Marinho Lopes of the University of Exeter and colleagues, could help surgeons select specific brain areas for removal to stop seizures.

Lost Password

Register