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Interim Survey Results Demonstrate Impact on Siblings of Children Suffering from Severe Epilepsy

“In a recently conducted survey by the Dravet Syndrome Foundation, 74 percent of caregivers expressed concerns about the emotional impact on siblings of children with Dravet syndrome, and the interim results from the Sibling Voices Survey are a significant advancement in our understanding of the far-reaching implications that severe childhood epilepsies have on the lives of siblings and loved ones,” said Nicole Villas, President & Scientific Director of the Dravet Syndrome Foundation Board of Directors.  “We are optimistic that the insights gained from the Sibling Voices Survey will assist in the development of tools to help families, and we are grateful for Zogenix’s dedication to addressing the unmet needs of this patient community.”

Epilepsy and Seizures in Older Adults

Did you know that seizures are more likely to develop in older adults? Learn to recognize the signs of seizures and how you can help. Epilepsy is a broad term used for a brain disorder that causes seizures. In the United States, 2.4 million adults aged 18 years or older have active epilepsy.1,2 About 1% of adults 65 years of age and older have active epilepsy, which is about 447,000 people.1,2 That’s about the size of Corpus Christi, TX. With the aging of the population, we can expect to see greater numbers of people with epilepsy. Epilepsy is more likely to develop in older adults rather than younger adults because as people age, the risk of seizures and epilepsy rises.3,4 Some older adults may have lived with epilepsy throughout their lives, but others might develop epilepsy later in lif...

Data Lacking to Explain Why US Doctors Prefer Keppra to Treat Pediatric Epilepsy

Doctors have several anti-seizure options to treat epilepsy, but little data exists to show which of these treatments is best for children. Nevertheless, according to a recent study on therapies prescribed for children under 3 with epilepsy, doctors in the U.S. appear to prefer Keppra (levetiracetam) as either a first or second option for treatment.

This Is What It’s Really Like to Have Epilepsy

Epilepsy nearly took Emily Borghard’s life before she was diagnosed—she’s not only learned to live with the condition, but thrive as well. For Emily Borghard, 28, life growing up on a farm in upstate New York was filled with carefree activities in her close-knit community. Volunteer work with local soccer programs took up much of her time, and when her first seizure hit, she was a senior in high school applying for college admission miles away from home. Epilepsy causes seizures as a result of unusual electrical activity in the brain, usually due to brain injury though often it has no identifiable cause. “My first seizure occurred during a car accident. I was going home after a sleepover with my friends and I drove right off the road into a creek. I live in such a small town th...

Health & Wellness: Detecting childhood epilepsy — it’s not their attention span

Sometimes Shelby would be there, but not “all there.” At the dinner table, her parents and siblings would catch her “zoning out”; she’d stop paying attention to the conversation and need to be jostled back to focus. They’d chide her for being so rude, then continue with their meal. It was just one of her quirks, they reasoned, and she’d grow out of it eventually.

Epilepsy Patients More Likely to Have Been Abused as Children, Study Finds

Childhood abuse, both sexual and emotional, is more frequently reported in epilepsy patients when compared to the general population, according to the results of a German study. These findings are in agreement with previous studies and highlight the need for additional vigilance on the familiar settings of children with epilepsy.

Left and Right Brain—The Surprising Truth

Neuroscientists and psychologists all around the world have put great effort into investigating the functions and differences of the left and right brain. The existence of differences between left brain and right brain have been proven by many studies. Especially valuable are the observations that have been made on brain injuries. In this article, you will learn everything about the left brain vs. right brain, including their functions and characteristics.

How to Choose a Medical Alert System

As technology advances, the range of options has grown! I have had many caregivers, parents and loved ones, ask me over the years what kind of Medical Alert/Monitoring Systems are there for someone with epilepsy.  Yes, some do work for a person with epilepsy.  There are a wide range of them today you can research and look at from personal emergency response systems, sleep monitors, watches and more that can offer piece of mind.

Pregnancy weight linked to epilepsy: study

Babies born to severely obese, or grade III obesity, was associated with an 82 per cent increased risk of epilepsy.   A study of almost 1.5 million children has found the risk of epilepsy almost doubled among those born to severely obese mothers.   Being overweight during the first trimester of pregnancy has been linked to an increased risk of childhood epilepsy.   A Swedish study of almost 1.5 million babies found the risk of epilepsy almost doubled from normal-weight women to very severely obese women.   Epilepsy disrupts the normal electrochemical activity of the brain resulting seizures.   The cause of this debilitating and often hard-to-treat condition is poorly understood.   With obesity on the rise, there is growing concern about the long-term neurological effects of children expose...

Children and Teens with Temporal Lobe Epilepsy May Be More Prone to Depression

Children and teenagers who have temporal lobe epilepsy are more prone to depression than those with different types of epilepsy, new research suggests. The study, “The relationship of seizure focus with depression, anxiety, and health-related quality of life in children and adolescents with epilepsy,” was published in the journal Epilepsy and Behavior. Psychiatric disorders like depression and anxiety are commonly reported in children and teenagers with epilepsy. According to the study’s authors, Dr. William Schraegle and Dr. Jeffrey Titus, the findings confirm that these psychiatric disorders are associated more with temporal lobe epilepsy. The researchers reviewed data from 132 children and young people ages 6 to 18 who had either generalized or partial epilepsy. The partial epilepsy gro...

The quest by parents and scientists to end pediatric epilepsy

Piper Wood had her first seizure in a setting meant for sunscreen, snorkels, shovels, and pails. The island was remote – that was the point of this family vacation. Six months old and turning blue, Piper finally calmed down and drew breath again after the island’s well-trained doctor brought her hour-long seizure to a halt by admin- istering a mix of morphine and water into one of her tiny veins. Tim and Ashley Wood needed to get their daughter to a better-equipped hospital immediately, but night had fallen and no medevac could land in the dark. Word spread quickly, and, one by one, villagers arrived in their cars and parked side by side with their headlights shining on the runway.

How to Prevent Bullying of Children with Epilepsy, Other Medical Conditions

These strategies just might save a life. Bullying can be a serious problem for any child, but for children with a medical challengesuch as epilepsy, the risk is increased. Knowing the facts about bullying is the first step toward preventing victimization of children and teens with epilepsy or other medical conditions, and keeping them safe. What exactly is bullying, and how does it affect the children involved? Bullying consists of aggressive behaviors that are repeated over time and involve an abuse of power by the perpetrator. It may take the form of verbal or physical abuse, or, especially for girls, cyberbullying through social media. The child who bullies learns how to use power and aggression to control and distress another, and the child who is victimized learns about losing power a...

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