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  1. Survey Reveals Burden Of Seizure Clusters On Children With Epilepsy And Their Caregivers

    Survey Reveals Burden Of Seizure Clusters On Children With Epilepsy And Their Caregivers

    Seizure clusters, a seizure pattern experienced by some patients with epilepsy, can have a profound impact on pediatric patients and their caregivers’ quality of life, according to a recent survey conducted online in September 2014 by Harris Poll.  The U.S. survey revealed that most caregivers (61 percent) and clinicians (80 percent) of children who experience seizure clusters felt that seizure...

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  2. Epilepsy: Vimpat EU positive monotherapy Phase 3 results

    Epilepsy: Vimpat EU positive monotherapy Phase 3 results

    UCB has announced positive results of a Phase 3 non-inferiority study designed to compare efficacy and safety of lacosamide to carbamazepine-CR (controlled release; retard tablets) as monotherapy in newly or recently diagnosed adult patients with partial-onset seizures. The study met its primary endpoint for the proportion of patients remaining seizure free for six consecutive months of treatment. UCB plans to...

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  3. MULTIPLE SCLEROSIS: Onset Delayed by Sun?

    MULTIPLE SCLEROSIS: Onset Delayed by Sun?

    A study of people with multiple sclerosis (MS) found that those who spent time in the sun every day during the summer as teens developed the disease later than those reporting not spending time in the sun every day. The study, which was published in the October 7, 2015, online issue of Neurology®, the medical journal of the American Academy...

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Pamela Boodram

EpilepsyU is Awesome for Parents!

Epilepsy U is a very valuable resource for people living with Epilepsy all over the word. I have met many people online and gained knowledge and formed new friendships. I have also created a page for Parents of School Children to allow parents to ask questions regarding a 504 plan, or IEP for their child. I am a certified school counselor and feel that I may be able to be a resource for parents. I also started a group for people living with or the parent of someone living with SCN1A gene (epilepsy gene). Before Epilepsy U I felt alone…NOT ANYMORE!!!

Pamela Boodram


Grow with the Community!

It’s overwhelming the amount of people who have no knowledge of Epilepsy or what to do if someone is having a seizure. EpilepsyU is a great resource for those who are looking for treatment and resources helpful to anyone interested in learning about the disorder. I highly recommend you sign up and grow with the community.