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  1. Perampanel for epilepsy: Still no proof of added benefit

    Perampanel for epilepsy: Still no proof of added benefit

    Fycompa has not been approved by the FDA as an add-on therapy for seizures because additional benefit has yet to be proven. From MedicalXpress: The drug perampanel (trade name Fycompa) has been approved since July 2012 as adjunctive (“add-on”) therapy for adults and children aged 12 years and older with epileptic fits (seizures). In a new early benefit assessment according...

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  2. STORIES: 5 Year Old Overcomes Seizures With Surgery

    STORIES: 5 Year Old Overcomes Seizures With Surgery

    Her eyes repeatedly jumped focus upward and to the left as her shoulders jerked forward. “My husband literally jumped out of bed when he saw it,” Annette Rockenstein said. “We knew in our guts that something wasn’t right.” Annette and her husband, George, raced their 14-month-old daughter, Raegan, to the emergency room at Rideout Memorial Hospital. They didn’t know the...

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  3. Epilepsy Drug May Treat Kidney Stones

    Epilepsy Drug May Treat Kidney Stones

    Anyone who has suffered from kidney stones is keenly aware of the lack of drugs to treat the condition, which often causes excruciating pain. A new mouse study, however, suggests that a class of drugs approved to treat leukemia and epilepsy also may be effective against kidney stones, researchers at Washington University School of Medicine in St. Louis report. The drugs are histone deacetylase...

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Pamela Boodram

EpilepsyU is Awesome for Parents!

Epilepsy U is a very valuable resource for people living with Epilepsy all over the word. I have met many people online and gained knowledge and formed new friendships. I have also created a page for Parents of School Children to allow parents to ask questions regarding a 504 plan, or IEP for their child. I am a certified school counselor and feel that I may be able to be a resource for parents. I also started a group for people living with or the parent of someone living with SCN1A gene (epilepsy gene). Before Epilepsy U I felt alone…NOT ANYMORE!!!

Pamela Boodram

Trey Copeland

Grow with the Community!

It’s overwhelming the amount of people who have no knowledge of Epilepsy or what to do if someone is having a seizure. EpilepsyU is a great resource for those who are looking for treatment and resources helpful to anyone interested in learning about the disorder. I highly recommend you sign up and grow with the community.

Trey Copeland

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