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RECENT ARTICLES


  1. Initial Data on ‘Pharma Grade’ Cannabidiol in Epilepsy

    Initial Data on ‘Pharma Grade’ Cannabidiol in Epilepsy

    Initial data from an open-label study in treatment-resistant epilepsy of pharmaceutical-grade cannabidiol — the nonpsychoactive ingredient in marijuana that is believed to be responsible for its antiepileptic action — suggest that it reduces seizure rate by about 30%. The product, said to be 98% pure cannabidiol, in development under the brand name Epidiolex by GW Pharmaceuticals, which funded this study, was associated...

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  2. Surgery May Prolong Life in Some Children With Epilepsy

    Surgery May Prolong Life in Some Children With Epilepsy

    Epilepsy surgery adds several years to the life expectancy of children with refractory epilepsy who are deemed suitable surgical candidates, and it may improve their quality of life compared with continuing medical therapy only, a new study suggests. While there’s a growing consensus that surgery is sometimes an optimal choice in some pediatric patients, the new research actually quantifies the...

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  3. Childhood Epilepsy: New Data on Prognosis

    Childhood Epilepsy: New Data on Prognosis

    Children With Epilepsy The diagnosis of epilepsy is life-changing for children and their parents. It provokes a host of questions (many of which are addressed in my book, Epilepsy: 199 Answers). Two of the most critical questions are “What caused the seizure?” and “Will it happen again?” The answers will define the course of epilepsy for that individual child and assist family...

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RECOMMENDATIONS

Pamela Boodram

EpilepsyU is Awesome for Parents!

Epilepsy U is a very valuable resource for people living with Epilepsy all over the word. I have met many people online and gained knowledge and formed new friendships. I have also created a page for Parents of School Children to allow parents to ask questions regarding a 504 plan, or IEP for their child. I am a certified school counselor and feel that I may be able to be a resource for parents. I also started a group for people living with or the parent of someone living with SCN1A gene (epilepsy gene). Before Epilepsy U I felt alone…NOT ANYMORE!!!

Pamela Boodram

Anonymous

Grow with the Community!

It’s overwhelming the amount of people who have no knowledge of Epilepsy or what to do if someone is having a seizure. EpilepsyU is a great resource for those who are looking for treatment and resources helpful to anyone interested in learning about the disorder. I highly recommend you sign up and grow with the community.

Anonymous

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