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  1. Study uses ‘systems genetics’ approach to identify potential target for epilepsy

    Study uses ‘systems genetics’ approach to identify potential target for epilepsy

    A single gene that coordinates a network of about 400 genes involved in epilepsy could be a target for new treatments, according to research. Epilepsy is a common and serious disease that affects around 50 million people worldwide. The mortality rate among people with epilepsy is two to three times higher than the general population. It is known that epilepsy...

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  2. SUDEP: Sleeping Position Linked to Risk of SUDEP

    SUDEP: Sleeping Position Linked to Risk of SUDEP

    Sleeping on your stomach may heighten your risk of sudden death if you have epilepsy, new research suggests. Sudden, unexpected death in epilepsy occurs when an otherwise healthy person dies and “the autopsy shows no clear structural or toxicological cause of death,” said Dr. Daniel Friedman, assistant professor of neurology at NYU Langone Medical Center in New York City. This is...

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  3. Researchers Discover New Fragile X Insight

    Researchers Discover New Fragile X Insight

    Scientists have gained new insight into fragile X syndrome — the most common cause of inherited intellectual disability — by studying the case of a person without the disorder, but with two of its classic symptoms. In patients with fragile X, a key gene is completely disabled, eliminating a protein that regulates electrical signals in the brain and causing a...

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Pamela Boodram

EpilepsyU is Awesome for Parents!

Epilepsy U is a very valuable resource for people living with Epilepsy all over the word. I have met many people online and gained knowledge and formed new friendships. I have also created a page for Parents of School Children to allow parents to ask questions regarding a 504 plan, or IEP for their child. I am a certified school counselor and feel that I may be able to be a resource for parents. I also started a group for people living with or the parent of someone living with SCN1A gene (epilepsy gene). Before Epilepsy U I felt alone…NOT ANYMORE!!!

Pamela Boodram

Anonymous

Grow with the Community!

It’s overwhelming the amount of people who have no knowledge of Epilepsy or what to do if someone is having a seizure. EpilepsyU is a great resource for those who are looking for treatment and resources helpful to anyone interested in learning about the disorder. I highly recommend you sign up and grow with the community.

Anonymous

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