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  1. Dementia sufferers may begin to lose awareness of memory problems 2-3 years before onset

    Dementia sufferers may begin to lose awareness of memory problems 2-3 years before onset

    People who will develop dementia may begin to lose awareness of their memory problems two to three years before the actual onset of the disease, according to a new study published in the August 26, 2015, online issue of Neurology®, the medical journal of the American Academy of Neurology. The study also found that several dementia-related brain changes, or pathologies,...

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  2. Interview With A Neurologist: UNDERSTANDING CAUSES OF SUDEP

    Interview With A Neurologist: UNDERSTANDING CAUSES OF SUDEP

    What is sudden unexpected death in epilepsy (SUDEP)? Currently, the accepted definition of SUDEP is the sudden unexpected witnessed or unwitnessed, non-traumatic and non-drowning death in people with epilepsy, with or without evidence of a seizure. It doesn’t necessarily have to be in the known context of a seizure, excluding documented status epilepticus, where people have seizure after seizure. Typically,...

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  3. Pivotal global Phase III study data for Fycompa® (perampanel) in primary generalised tonic-clonic seizures now published in Neurology

    Pivotal global Phase III study data for Fycompa® (perampanel) in primary generalised tonic-clonic seizures now published in Neurology

    Pivotal, global phase III study results for Fycompa® (perampanel) in primary generalised tonic-clonic (PGTC) seizures are published for the first time today in Neurology.1 Study 332 assesses the safety and efficacy of perampanel compared to placebo, in primary generalised tonic-clonic (PGTC) seizures in idiopathic generalised epilepsy (IGE). Perampanel, which received the new indication from the European Commission (EC) on 24...

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Pamela Boodram

EpilepsyU is Awesome for Parents!

Epilepsy U is a very valuable resource for people living with Epilepsy all over the word. I have met many people online and gained knowledge and formed new friendships. I have also created a page for Parents of School Children to allow parents to ask questions regarding a 504 plan, or IEP for their child. I am a certified school counselor and feel that I may be able to be a resource for parents. I also started a group for people living with or the parent of someone living with SCN1A gene (epilepsy gene). Before Epilepsy U I felt alone…NOT ANYMORE!!!

Pamela Boodram

Anonymous

Grow with the Community!

It’s overwhelming the amount of people who have no knowledge of Epilepsy or what to do if someone is having a seizure. EpilepsyU is a great resource for those who are looking for treatment and resources helpful to anyone interested in learning about the disorder. I highly recommend you sign up and grow with the community.

Anonymous